Happy birthday Tootsie! Hard to believe that sweet Tootsie is almost 1 year old (it’s her birthday on March 12). Tootsie “works” at FRN during the week – for nearly 10 months. Here is a picture of her first day…
Learning about my rights, and my child’s rights
We asked mom Katy her daughter’s journey and how it feels to be a 2019 Project Leadership graduate: Q: Can you tell us a little bit about your child and your journey as a parent of a child with Cerebral…
How I learned my child has Autism
We asked mom Ana about her son’s Autism journey and what it was like to partner with FRN. Here’s what she said: Q: Can you tell us a little bit about your child and your journey as a parent of…
How I became a board member
We recently sat down with long-time board member James Ricks to ask him a few questions about how he got involved with FRN and what keeps him engaged as a board member. Q: Can you tell us about your…
No one told me my son had been diagnosed with Cerebral Palsy
When I noticed my infant son, Marvin, wasn’t developing as expected, I was worried and anxious. My son couldn’t tolerate sounds, in fact, he couldn’t drink from a bottle and it was hard for him to eat. His body was…
There wasn’t a playgroup for my son until I started one
My son Adnan is the sunshine in my life. He is always happy and has the most beautiful smile in the world. He has a rare syndrome called PACS1 and he was diagnosed in 2013. He is the 3rd in…
Meet Tootsie, our newest volunteer
Meet Tootsie! She has dark hair, dark eyes and weighs in at 15 pounds. Tootsie is FRN’s newest (and cutest) ‘volunteer ‘. If you come in to the main office over the next 18 months, you might even get a…
Dental Care is Hard to Find for People with Autism
As printed in the Washington Post, featuring FRN’s Executive Director Eileen Crumm: Dental care is tough to find for people with autism, other developmental disorders By David Tuller, April 22 When Ava Terranove began feeling oral pain last July,…
This father’s perspective
As with most fathers to daughters, when my daughter was born, I was filled with an overwhelming excitement, uncertainty, fear, and nervousness, but most of all with an intense sense of duty that I would be the protector to this…
The Endrew F Decision can make you a better IEP negotiator
Many of us have a child receiving special education services with an IEP (Individual Education Plan). I have been working with families for 20 years now, and I have yet to meet a parent who looked forward to an IEP…